Primary Childrens Hospital meeting today at 10:00am
In attendance:
Grandpa (Bill) Isham
Mom (Kimi) and Dad (Shade) Kastner
Aunt Nikki (Chamberlain)
Grandma Kastner (Katherine)
Grandma Isham (Jeannie) was playing with Tristan, at Tristan's house while we all met.
Here is the information the doctor gave us today. It was about an hour long discussion so I am attempting to keep it 'real'.
Because the tumor is now 26mm by 21mm and has grown "significantly" enough to force us to do something" per the doc,....we are now looking at surgery for Tristan.
Tentative date August 6th (Thursday) The name of the procedure is (don't quote me) interhemisphere intfornus seal. ( I searched for information on the Internet but didn't find any, if someone does please please please post it).
The approach (at least the best I can remember it would be - and in the simplest terms)
The surgeon will remove a section of the scull approximately 2 inches by 1 inch, then would pull back the "leather like" covering of the brain, and basically go through the direct middle of the brain between the two hemispheres and separating multiple layers until the tumor was visible.
Note: The doctor said this process alone can take 2-3 hours.
Once the tumor is exposed they take a biopsy, and have a pathologist look at it to determine the cell type and that it is indeed benign.
Once this is determined the surgeon "hits" it with a laser to break it up and then uses suction to remove it.
Once the majority of the tumor is removed the "rind" of the tumor is scraped, removing as much as possible. The doctor said this how they "kick it in the teeth" so that any that remains will die and/or will not continue to grow.
The whole procedure will take approximately 8 hours (assuming all goes well).
Tristan would be in ICU for approximately 24 hours, and god willing and if all goes well could be back 'ok' within about 4 days. He would be in the hospital for about a week.
There are obviously risks galore and the possibilities of paralysis, weakness, googly eyes etc. however, the doctor said that because children are the best healers of themselves that if in fact there is residual effect however remote the likely hood. (approximately 1% in may instances) the hospital has rehabilitation specialists that will get him back to normal within weeks. The googley eye should take care of itself and if it doesn't the Moran eye center can fix it.
This is the only version I can write without drowning the computer in tears and will attempt to expound in the next few days.
God bless Tristan and his family.
This blog is meant to share information about Tristan. On Friday March 13th, 2009 Tristan had an MRI at Primary Childrens Medical Hospital where they found a tumor they believe is "Pilocytic Astrocytoma" If someone finds something you think we may all want to see please post it here. If the doctor gives us any information or answers an email or sets up appoints whatever...this will hopefully keep us all informed.
Showing posts with label Tristan Kastner brain tumor resection discussion. Show all posts
Showing posts with label Tristan Kastner brain tumor resection discussion. Show all posts
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